Monday, March 26, 2012

Nine minus one equals...

Eight more radiation treatments until the treatment plan is finished!!! Ken had blood work this morning and we checked to see that his levels would be adequate to allow for chemotherapy to resume tomorrow. The white count was a tiny bit low, but we think they will let the chemo happen (since we couldn't have it last week).

Ken's neck looks like he fell asleep under a sun lamp for a week. He'll need to slather on lots of the special  lotion the doctor recommended, or there may be some skin breakdown. If that happens, we may have to delay some of the radiation...NOOOOOOO!  We won't let that happen.  They say that a difficult second half of this treatment means that the treatment is really working well against the tumor. We hope they are correct! We KNOW it is working!!

Snapped this picture of Ken and Joey last night. They kinda look alike now that Joey has his summer cut and Ken shaved off his beard. What? You don't see the resemblance??

We hope your days are full of sun,
Paula

Saturday, March 24, 2012

Single digits...

This week has been so ridiculously busy, I can't even remember everything we did! Glad it is over and our actual treatment countdown has begun: 9 days and counting!!!!!Everyone needs to keep their fingers and toes crossed that there are no more delays, or diminished blood levels, or full moons until Ken can wrap this thing up. OK? Is it a deal??

While the radiation is winding down, they are taking a pretty heavy toll on our boy. He has had to deal with some heavy duty burns on his neck (and in his throat), some nausea (controlled with medication), and a whole lot of exhaustion. We anticipate a rough ending to this treatment, but are really trying to look toward a positive end result. Sometimes that is what allows us to get into the car and head back to do it all again on Monday morning.

Our weather has been pretty amazing this week. As a matter of fact, it was so great that I took our mower on it's maiden voyage of discovery around the acreage. Thought if I could at least get the back forty cut, I could finish up the next day. As I  mow, I tend to hit a Zen-like state and forget what I should be doing sometimes. I completed the back, and headed toward the side yard. Forgetting that I hadn't eaten yet that day, and was really tired, I rounded the corner and started with the front of the house. Heading down the driveway, after cutting a few long swaths alongside, I hit the fence...literally. I hit the fence going full speed ahead, and sat there holding my breath, waiting for the fence to fall down. Geez! No skid marks, no attempt to hit the brake. Just ran smack into the fence and started to laugh. Yes, I took a break, ate some lunch and finished up about 4 pm. Guess what? That's not even our humor for the day.

Here it is: So, we had a week long early morning fog fest. Not just fog...FOG! As we headed out each morning, waaayy before sun up, we carefully drove (crawled) to the hospital. Well, yesterday as we were making our way down the dark and foggy road, I noticed a whole lot of little critters scattered about, the victims of carelessness and cars colliding. Of course, I was driving so slowly, that when a bunny hopped out in front of me from the side of the road, I slowed down and he made it safely to the other side. But, then his slower brother decided to meander out and almost made it, then reversed and ran under my tire. I swear. He ran into ME. Anyway, I was devastated. I asked Ken if I should stop...yeah he looked at me funny, too. We went on to Ken's appointment. So, afterwards I considered taking another route home, to avoid seeing the carnage I had created earlier that morning. We both decided to just tough it out and go the shorter route home. Anticipating the nasty on the roadway, the fog having cleared enough by now to see the roadway, I kept watch...and then we reached the place the bunny met his end. Aha! No bunny. So I said to Ken, " Well good. Maybe I just winged him and he hopped back home." And Ken replied, " Great! So now maybe there will be an Easter after all."

Hope your weekend is bright,
Paula

Tuesday, March 20, 2012

Can't always get what you want..

Today was cut short when Ken was told that he wouldn't be having his chemotherapy because his platelet count was too low. So, we came home and he is relaxing! He will have the "lost" chemo on the back end of his treatment in a couple weeks. Better to be safe (than to push it and get sick).

Ken said goodbye to his lovely beard last night. While his hair should remain intact during chemo, his beard, sadly,
 did not! Kinda weird to have exactly one half of your beard fall out overnight, right? Actually, he looks younger without the facial hair. See for yourself -

Tomorrow will be a better day!
Paula

Monday, March 19, 2012

Winter's finally ending...

Happy Belated St. Patrick's Day!!  I guess my mind was on other things...anyway, Happy Last Day of Winter!!
It has been such a mild winter here (and we are extremely grateful), that our change over to spring is really more like a leap into summer. Not a bad thing, really. It'll be easier for Ken to keep warm!

Today we crossed off radiation treatment # 22. Ken's appointment with his radiation oncologist went well. Still on track for weight, blood levels, and all that we need to keep this therapy working in our favor. While Ken did have to use his feeding tube over the weekend, he actually managed to gain a pound. This morning his throat was a little better, and he even ate a little Cream of Wheat along with his liquid sustenance. This guy is a trooper.

We decided to post this video to give you an idea of what Ken's radiation treatment is like, as far as time goes. Just watch and listen. Multiply this by sixteen (16). That's how many times the circuit runs this program around Ken's head, neck, and upper chest each session. When you are in the waiting room, it seems to go on forever...




Can't wait for spring,
Paula

Saturday, March 17, 2012

Hitting the wall really hurts...

This week has proven to be most brutal. Kens throat has now decided to take some downtime, so the new nutrition of choice will be Jevity liquid supplement. (I remember the name by thinking of jovial...don't ask.) Our first attempt last night wasn't pretty. I don't think I would've been up for another go, but Ken was ready this morning and things went much more smoothly! While this option is a medical necessity, it also presents a dilemma for me. Am I really supposed to feel comfortable cooking meals for myself when Ken can smell everything, but not be able to partake of anything?? I am really at a loss! While he would not want me to even think twice about this, it really, really bothers me. It'll all work out...just stinks!

Now, as to the important matter at hand: We want to thank you all, once again, for your steadfast friendships and many words of encouragement. Your generosity of spirit has been more than appreciated, and I thought I would take a couple of pictures to show you how your cards are kept available for Ken to meander through every day. A little whimsy in their presentation just helps to keep things light. Ha!




Wishing y'all a relaxing and/or profitable weekend,

Paula


Friday, March 16, 2012

Another one bites the dust...

We crossed another week off of our calendar and realized that within three weeks this will all be behind us!
 We worried a little when we hit the waiting room this morning, as it was full...it should have had only one person waiting. The mainframe for the entire hospital was offline, and the hope was that it would be up and running quickly. Did we want to wait? Whatta you think? It did, indeed, get fixed and treatment # 21 became a thing of the past!

These remaining weeks will continue to be difficult for Ken for many different reasons. We never know, nor can we anticipate, what will hurt next or no longer work the way it should. Ken simply has to suck it up and roll with it. Not a fair deal, if you ask me. Really glad he will have a couple of down days to rest and recuperate!!

I made the executive decision to include a picture from happier times. This is Ken with his best buddy, Joe Cocker aka Joey. Too cute, right?

I also hope to include a couple videos next week...if my computer cooperates.


In the meantime, have a happy, HEALTHY weekend,
Paula










Wednesday, March 14, 2012

A beautiful day in the neighborhood...

Spring has sprung here in lower, slower Delaware. It is absolutely beautiful today. Perhaps a saunter down to the mailbox and back would be appropriate this afternoon.

 So, after much cajoling, my computer finally allowed me to download these pictures of Ken from his chemotherapy appointment yesterday. For those of you keeping track, this was chemo treatment # 5 and radiation treatment #18. (We finished #19 this morning.)

Would you tell me how anyone could possibly look this adorable while I.V.'s full of ooky stuff drip into their veins?
Pretty amazing. Maybe it's because he got to choose a window seat with a lovely view of a garden...
We will leave you with a little story that we hope makes you feel some joy, if for no other reason than it's so nice when a plan comes together. A couple days ago we were fortunate enough to be on hand for the final cancer treatment for a lovely lady we shall call Mrs. M. She had been undergoing both chemo and radiation for an inhumane length of time in hopes of eradicating her late stage breast cancer. Not only did she have to deal with the effects of her treatments, but had to make not one, but two trips back and forth from quite a distance away, five days a week. Add to this the fact that she had to drive herself as she had no one to help her. Well, over time spent together these last few weeks, we got to know Mrs. M pretty well. The one food she had been able to still enjoy was CHOCOLATE! This is also my favorite thing, so I tried to bring her little treats every so often. She was always most appreciative. As her final day of treatment approached, we tried to think of something to give her that she might enjoy. It needed to be something unique, because we wanted to surprise her if we could. During one of our many trips to the pharmacy, we noticed that they were selling all of their remaining Valentine's Day candies to make room for the onslaught of Easter's goodies. (So silly really, as they are the same things but with different wrappers.) Anyway, I saw a Hershey's chocolate apple wrapped in golden foil. I picked it up in hopes that the appropriate gifting opportunity would arise, not originally even considering Mrs. M. Finally, the night before the FINAL TREATMENT, we were packing up our usual bags for the trip to Ken's treatments. It hit me...the apple was for Mrs. M. 
The next morning, I placed the gift bag with the chocolate apple and a card on the chair that Mrs. M would occupy when she arrived to the cancer center waiting area. Ken had gone in for his radiation when she arrived. She was so tickled to see the gift bag, and said, "You shouldn't have done anything for me. Shall I open it?" I nodded and watched her face. First, she was surprised. Then she looked very puzzled. "I know you know I love chocolate, but why an apple? I'm not a teacher." I jumped up and said, "Because an apple a day keeps the doctor away!!!!" Her smile absolutely lit up the room for a split second. Then, her eyes misted up and she gave me a huge hug. When Ken came out from the "magic door", she hugged him as well. It was a moment I will long remember. This is what's important now.

Hope your day is sunny,
Paula